Thursday, November 17, 2011

Short stay

Nov. 16th, 2011: After a long wait in the ER, Sy had a pretty short stay at the hospital. With a new med added to the list to keep his potassium down and a fresh blood transfusion Sy was discharged and sent home. He is now home and back to his usual day, school and video games while he anxiously waits for his first plane ride ever and then 2 more exciting ones to follow! I think he is more excited about the flight then he is about the destinations. Reminds me of the 1st time I took him to Disneyland...He wanted to go on Tower of Terror so bad that even though his heart was beating through his chest and he was the most scared I have ever seen him, he toughed it out and went on the ride. After the ride he looked at me and said, "I never want to go on that again!" Then wouldn't you know it, next day, when I asked what ride do you want to go on? He said "Tower of Terror". Nothing can stop this kid, he knows no fear.

Tuesday, November 15, 2011

No Pizza, No soda, no fun!

November 15, 2011: 10:00pm Matt received a phone call telling him Sy's Potassium levels were dangerously high and they wanted him to come in. So they made the trip to Stanford ER where they waited all night. This morning they were finally given a room at LPCH where Sy is now. He was put on meds and his potassium levels dropped while he was on them but then slightly climbed back up. He is now on a strict diet limiting all his favorite foods...pizza, soda, Gatorade (apparently all high in potassium. Hopefully his potassium level stabilizes soon so he can get back home and rest up for a few busy weeks.

Toward the end of the week Sy is supposed to meet Andre Ward (professional boxer). December 3rd Sy will be flying down to LA to sit ring side for his fight and meet Oscar DeLaHoya. When they return Sy will get to recover and rest up before his big trip to Florida for "Make-A-Wish" where he gets to go to Disney World. Then after the 1st of the year Sy, Matt and I will be making a trip to Chicago to go to Lego Discovery Center, thanks to KRXQ and their 27 days of Xmas Wishes.

video

Monday, November 14, 2011

Round 12- Fundraiser for Team Sy

Saturday Nov 19th 2011 @10pm-2am

Come to a fundraiser for Team Sy. Enjoy a night out with old friends and new friends for a good cause. 
 
Club Mutiny M F B
Location: 422 W 2nd St Antioch Ca

Info:
$5 Cover $10 After 11pm
Complimentary Shot W/ Cover

Devotion Vodka Mixed Drink Specials All Night

DjNaughtyJ Upstairs Spinning The Top 40 Rock,Reggae and HipHop
45 Blunt Dj's Downstairs Playing The Bayareas Hottest Music

Guest Appearances: Jungo(pink dolphin clothing) Sleepy D, D Lo, Pody Mouf, Young Cee.. and More!

Come Hang Out With Savage Angels Modeling Team All Night..
Special Thanks To Devotion Vodka, Baldhead Productions, HD Photography, Pink Dolphin Clothing

Tuesday, November 8, 2011

Cancer takes this round

November 8, 2011: Today Sy made the trip to LPCH to meet with doctors and get the results from his kidney tests and then to prepare for round 12 of Chemo. But the doctors had other plans. Despite his lab work being good all week and appearing to bounce back stronger than ever from round 11 chemo. The test results didn't go like we wanted...Sy lost about a quarter of his kidney function and Doctors are afraid the next dose of chemo will kill his kidneys :( so for now round 12 is on hold . At some point next week Doctors will be extensive amount of testing including more kidney test ,scans and a echo of his heart and hope by then we find a chemo that will keep giving us the good results of the tumors shrinking! So cancer may have one this round, but Sy will keep fighting! In the meantime he is enjoying the fact that he doesn't have to have chemo this week. Please continue to help us spread awareness of children's cancer, HCC, and Sy's amazing fight with this horrible disease. #cancersucks #makesyastar

Sunday, November 6, 2011

Shocking the World

Nov. 6, 2011: For the first time in about 5 rounds of chemo Sy has beat the odds and not needed a blood transfusion. Just when you think he should be at his weakest he continues to fight and defy the odds. With great lab results Sy prepares for round 12 of Chemo and we all expect another K.O.

Sy's story has spread all over the US., Canada, Russia, Germany, Malaysia, Japan, UK, Philippines, Mexico and India...but don't stop now. Please continue to work with us on making Sy famous and his story being heard around the world. So post the blog, become a follower on the blog, befriend Sy on facebook, follow TeamSy on facebook, and follow @officialteamsy on Twitter