Thursday, March 22, 2012

A day of many meanings

On March 20th 2002 Sy was born and became such a big part of so many of our lives. I know for Matt and myself our lives were forever changed and each day was so much brighter with that smile. 10 years later on that same day when we all should have been celebrating another year older for Sy we found ourselves devastated and holding onto every memory of the last 10 years and not knowing what the next few months bring. Sy went to LPCH for another routine scan reading, everyone with high hopes of good news like the last appointment only to be crushed.

From Matt: "so everyone has been asking of Sy's results and honestly I don't have the strength to tell each and everyone separately. Drs. Told us next few months are going to get bad. Sy's main tumor in the liver has grown 15% since the last months scans which is fast and not what we expected, in addition to his tumors in his lungs there are several new tumors. Drs. didnt have an exact count but it's up over 30 now.:( We are out of options in therapy and it's all about quality if life. We love each day to the fullest with Sy and enjoying the good days. Please pray for him to pull off another miracle and prove drs. wrong again. I love my son and it's breaking me to come to this point. :( NEGU!!!"

Over the last year I have seen more strength from my brother and Sy then I knew was possible. Sy is my hero for everything he has gone through and still facing each day with a smile, a joke and caring for others. Matt has held it together on the outside to only be crumbling inside so that Sy never sees him down or sees his worry. They are both so special, please continue to pray and give them strength. I love you both so much.


  1. My little girl would have turned 12 this month, diagnosed with this same cancer just before her 8th birthday. Cass fought for 2 years after being told she had eight months. Where there is life there is hope, every parent that has or had a child fighting cancer says those famous words"never ever give up".
    Cass never saw me cry and I never saw her cry. Keep making those memories and keep holding onto hope.

  2. I love you Soo much Sy and i know that God will work his magic like he has been and will alwayss do and I am sure its hard for everyone in the family including his mom and grandpa Frank that loves you so much and has been there for you always.

  3. Sy you are a warrior and your spirit is so very bright. Whoopin on your aunt and cousin at laser tag was my favorite day of summer last year. I am forever grateful that I was blessed to have shared in even just one day of your light. You are in my prayers always.

  4. This is very tough news to hear from the doctors, but our God is so much bigger than all the doctors. Sy's prayer warriors will never give up. Praying for Sy and your family.

  5. my prayers & love goes out too you babyboy <3
    stay strong your a blessing .your pulling off what most people cant .

  6. Sy you are my world champion! I don't need any other. You are so very special and my family and I love you. We are in this fight with you and your family.